Current Sections: EthicsGuidelines And Publications
New Zealand
Click here for a full list of New Zealand ethics guidelines and publications.
International
Please note: Guidelines and publications that are of relevance or interest are noted below, together with links to websites where the texts can be downloaded. In the case where such link is not provided, we suggest that contact be made directly to the authors/publishers concerned.
Declaration of Helsinki
Adopted by the 18th World Medical Association, Helsinki, Finland, 1964 (updated in 2008)
International Guidelines for Biomedical Research Involving Human Subjects
Council for International Organisations of Medical Sciences (CIOMS) (1993, revised in August 2002)
International Guidelines for Epidemiological Research
Council for International Organisations of Medical Sciences (CIOMS) (1991)
Operational Guidelines for Ethics Committees that review Biomedical Research
World Health Organisation (2000)
National Statement on Ethical Conduct in Research Involving Humans PDF 884KB
National Health and Medical Research Council, Australia (2007)
Common Rule
45 Code of Federal Regulations 46, US Department of Health and Human Services and Other Federal Agencies (1991)
Statement on DNA Sampling: Control and Access
Hugo Ethics Committee (February 1998)
Statement on the Principled Conduct of Genetics Research
HUGO Ethical, Legal, and Social Issues Committee Report to Hugo Council (21 March 1996)
Response to article in November 2009 issue of Ethics Notes
By Tim Dare Chair, HRC Ethics Committee (click here for the full article in Ethics Notes - April 2010)
A recent opinion piece in Ethics Notes provoked a good deal of interest and some consternation among readers. Martin Tolich and Paul Flanagan's article drawing comparisons between what has become known as the unfortunate experiment and the Tuskegee Syphilis Trial (Ethics Notes - November 2009) prompted a number of letters and emails to the HRC, many of them complaining that the article misrepresented events at National Women's. A selection of the letters can be viewed through the links below:
Derek Dow (PDF 65KB)
Elizabeth & Graeme Overton (PDF 45KB)
- Click here for attachment to writer's letter (PDF 97KB)
Peter Nobbs (PDF 48KB)
Kevin Hicks (PDF 69KB)
Helen Barlev (PDF 74KB)
- Click here for attachment to writer's letter (PDF 540KB)
Further sources are available as follows:
1. A link to Linda Bryder's book: A History of the 'Unfortunate Experiment' at National Women's Hospital
2. A link to the collection: The Cartwright Papers, edited by Jo Manning
Last Updated : 13 April 2010 16:34:55.
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