Lay summary
Hydrocephalus involves fluid buildup around the brain, requiring a surgically implanted tube for drainage. Patients and caregivers worry about tube blockages, with nonspecific symptoms like irritability, headaches, and vomiting. Detecting dangerous brain pressure increases, which can impede blood flow and be life-threatening, needs hospital scans and possible hospitalisation. Even then, doctors may not be certain if brain pressure is dangerously high. We aim to improve hydrocephalus management by enabling home brain pressure monitoring. Building on our initial safety study, our pressure sensor will be placed in the brain during tube placement surgery. Patients will monitor their brain pressure at home for at least one year. A retrospective analysis of clinical events, brain pressure values, and symptoms will show the usefulness of at-home measurements and calculate healthcare cost savings from potentially avoidable scans and hospital stays. Clinical adoption of home brain pressure monitoring has the potential to transform hydrocephalus care.